Privacy Policy

This Privacy Policy describes our practices with respect to the data we collect through the Application, Website, and Services. By downloading, accessing or using the Application, the Website or the Services, or providing us with information in connection with the Application, the Website or the Services, you agree to the Terms and Conditions and the terms hereof. Privacy Policy. MATAKI CONSULTATION attaches great importance to the protection of privacy and personal data. In accordance with European regulation 2016/679 of April 26, 2016, the law « Informatique et Libertés » of January 6, 1978 amended and the decree of October 20, 2005 amended, MATAKI CONSULTATION makes strong commitments to the people concerned. which concerns the data collected via the Application, MATAKI CONSULTATION is responsible for data processing. For any questions relating to the protection of privacy or in the event of desired actions in relation to your privacy, please contact contact@mobarni-ts.com.

1. Modification of the Privacy Policy.

We reserve the right to update or modify this Privacy Policy at any time without notice. Your continued use of the Services after any modification or revision of the Privacy Policy will indicate your agreement with the terms of the revised version of the Privacy Policy.

2. What type of data do we collect?

We collect personal data transparently and explicitly. We collect two main types of data: restricted data and shared statistical data. The shared statistics are visible to those who are not registered on MATAKI CONSULTATION. We publish Aggregated Shared Statistical Data Reports, after a complete anonymization process, which renders statistics unidentifiable inside and outside the MATAKI CONSULTATION community. The shared statistics can indicate the number of patients identifying a healthcare professional or the number of patients indicating a pathology by geographical area. Restricted data is not automatically shared or displayed to other users or third parties. Restricted access data is only available to users and MATAKI CONSULTATION. Shared statistics include the information we collect at the time we collect it: You add biographical information: You can personalize your MATAKI CONSULTATION account by recording biographical information, such as: sex, age (deduced from your date of birth), place (city, region and country) You identify a health professional: The identification of health professionals on + MATAKI CONSULTATION requires that you record information relating to this health professional, such as last name, first name, address, pathology treated, etc. You share your testimony on MATAKI CONSULTATION which, like most online communities, is a public forum and users recognize and accept that any information shared through free text fields (e.g. forum, treatment reviews, survey s, annotations, logs) or images could be linked to shared user statistics (which are fully anonymized and aggregated and may be shared with others, or displayed for others). Restricted data is information that we collect when we collect them: You create a MATAKI CONSULTATION account: If you wish to access directories and other services, you must create a MATAKI CONSULTATION account. When you create a MATAKI CONSULTATION account, we ask you for some personal information, including your email address and a password. Your email address will be used to log into your account. You can also create your MATAKI CONSULTATION account using a different credential such as a Facebook or Google account. We will ask for permission to access basic information for this account, such as your name. You can stop sharing this information with us at any time by removing MATAKI CONSULTATION’s access to this account. In addition, to secure the data made available on the site, we record your IP address.

You add information to your profile: You can personalize your MATAKI CONSULTATION account by adding other types of information to your account, for example: first name, last name, date of birth. Only your gender and your age deduced from your date of birth can be included in the shared statistics. You contact us for help: Whenever

When you contact MATAKI CONSULTATION for assistance, we will record your email address and any additional information you provide in your request so that we can provide assistance and improve the Services. If you contact us when you are already logged into your account, the web form automatically pre-fills this information, so you don’t have to enter it manually. You can also contact MATAKI CONSULTATION on public forums such as Twitter or Facebook; however, we cannot ensure the privacy of your communication to us if you contact us through these channels.

You invite friends: You can invite your friends who are already using MATAKI CONSULTATION or invite friends who are not yet members. You can invite friends in several ways, for example by providing their email addresses, or by accessing social networking accounts or from the contact list website on your phone. When you share your friends’ contact details with us to add them as friends, we will only use it for that purpose. We do not store your telephone contact list, and it is deleted immediately after it has been used for this purpose. You are looking for an expert: to secure the data made available on the site, we record your IP address with each search carried out.

3. How do we use the data (purpose)?

We may use your personal information, such as your name and email address, to: Respond to your inquiries, comments and messages on various platforms such as social media or send you newsletters to inform you of our current and upcoming activities and services. Send you news and information about the condition you have identified based on research that we believe may be of interest to you. Allow you to send messages or invitations to a friend through the Apps. As we deem appropriate: (a) under applicable law, including laws outside of your country; (b) to comply with legal process; © to respond to requests from public or governmental authorities, including public or governmental authorities outside your country of residence.By using, accessing and entering information in the Application, the Website and the Services, you agree to all data that you have provided or that you may provide subsequently as part of the Application, Website and Services, as well as any data that you may provide as part of the functions or related Services of the Application , which are not currently present in the Application, but could be introduced later, at any time, you consent to the compilation, processing, analysis as well as the anonymous disclosure of the statistics produced to a third. The main goal of data collection is to help and deepen research on chronic conditions in order to improve and quantify our services. In addition to these objectives, the compilation, processing, analysis and anonymous disclosure of statistical data may be carried out with the aim of:

1) Establish anonymous aggregate reports, analyzes, graphs, infographic tables in order to: Work with external researchers, companies in the health sector (e.g. pharmaceutical industry or medical device sector), healthcare professionals to understand the lives of patients with chronic pathologies and improve existing or future solutions. Compare the different groups of the population affected by the pathology for our understanding, as well as for communication and awareness of this pathology Participate in academic research by producing a publication sponsored by MATAKI CONSULTATION or a third party (cf. Disclosure of statistics to You can always unsubscribe at any time by going to “My Profile” and adjusting the “opt for search” setting.

2) Improve the services offered by MATAKI CONSULTATION in order to: Improve machine learning and affiliated services by pathology. Create group or custom schemas. You can always unsubscribe at any time by going to “My Profile” and adjusting the “opt for search” setting.

3) Quantify the use of MATAKI CONSULTATION directories and services

4) Develop accordingly new services and related features that can be used to improve the lives of patients. MATAKI CONSULTATION may also periodically ask users to respond to short surveys on their experiences (includings questions about the Applications, the Website and the Services). Survey responses are analyzed, combined with shared user statistics and shared with a third party. User participation in these surveys is not required, and refusal to do so will have no impact on the user’s experience of the Application, Website or Services. Application, our Website or Services are provided with the support of third parties. These third parties may have adverse event reporting requirements related to regulated products that are used by users in our community and MATAKI CONSULTATION assists these third parties in reporting adverse events to regulatory bodies.All data you provide in the framework of the Application will be treated with absolute anonymity and any statistical information provided to a third party on the form, including but not limited to, the aggregated reports will not contain any personal information, including the following information, surname, first name, email, phone number, date of birth of a person who downloaded, accessed and used the Services as part of the Application (“User”). In case of email from us, you can, at any time , unsubscribe from this prospecting using a simple link at the bottom of electronic communications.

MATAKI CONSULTATION reserves the right to create additional and / or complementary collection means. As such, MATAKI CONSULTATION will specify, in accordance with the regulations, the purposes specific to the processing concerned on the data collection page. There is no fully automated decision-making by MATAKI CONSULTATION on the basis of your personal data.

4. Disclosure of statistics and data to a third party (recipient)

Statistics and / or data may be disclosed to a third party in the following cases:

1) As we grow our business, we may sell or buy businesses or assets, and securities may be issued by the company to existing third parties or associates or transferred in any form. whether to third parties.In the event of a sale, merger, reorganization, dissolution or similar event relating to all or part of any of our business or our assets or securities, your information and personal data could be among the transferred assets. 2) We may also disclose your data if this is required by law or regulation or if, in good faith, a such action is deemed necessary (i) to meet a legal or regulatory obligation. (ii) protect and defend our rights or property, (iii) act in urgent circumstances to preserve the personal safety of users of the Services or the public. 3) Completely anonymous statistics derived from data collection may be included in anonymous and aggregated reports, analyzes, graphs, tables, infographics to support migraine research and awareness, cf. How do we use your data? We keep your personal identification information for as long as you maintain a MATAKI CONSULTATION account. Once the account is deleted, your personal identification information will be deleted within 30 days.

5. How to edit or modify the data?

The personal information and data that you provide to MATAKI CONSULTATION can be modified from your MATAKI CONSULTATION account (eg: change the user’s email address from your MATAKI CONSULTATION profile). If you delete your account data, it will disappear. The backups of this data will remain associated with your MATAKI CONSULTATION account and in our archive servers. To modify your consent to the use of cookies Click here

6. How to deactivate your MATAKI CONSULTATION account?

You can deactivate your MATAKI CONSULTATION account by contacting us at contact@mobarni-ts.com from your user email address. When you do so, your personally identifiable information will be removed from the Services, including but not limited to your email, name, friend lists, and links to other sites such as Facebook. Backup copies of this data will be deleted from our server on an automated schedule, which means it may remain in our records for a short period of time. MATAKI CONSULTATION may continue to use your de-identified information after the deactivation of your account. De-identified information is completely anonymous and there will be absolutely no way to trace this information back to

your personally identifiable information. It is important to note that identifiable data from the aforementioned backups is not deleted until the account is deactivated.

7. Other security issues

MATAKI CONSULTATION cannot guarantee the identity of other users with whom a user may interact while using the Application, Website or Services or who may have access to a user’s shared statistics. In addition, we cannot guarantee the authenticity of any data that users may provide about themselves. Finally, users should be aware that MATAKI CONSULTATION takes commercially reasonable technical precautions to ensure the security of user data.

8. Risks and benefits

When using the Application, Website and Services, users are free to skip any questions or data fields that are not required. Users are also free to stop using this service at any time. If a user chooses to deactivate their account, the user’s data will remain in the system for verification. If a user has opted for research, any research performed before a user’s account was deactivated will still be included in the statistics produced.

9. Other important warnings

Children’s privacy. If you are under the age of sixteen, please do not submit any personal data or information through the Application, Website or Services without the consent of a parent or guardian.

Third Party Websites and Advertising Services.

Please note that our Application, Website and Services may contain links to third party websites which may collect personal information about you. When you click on one of these third-party links (eg to the sites of patient associations), you are taken to another website. We have no control over third party websites and this Privacy Policy does not cover the information practices or policies of such third party websites. We encourage you to read the privacy policies of all of these websites, as their privacy policies may be materially different from our Privacy Policy. In addition, certain advertisements in the Application, the Website and the Services are served by third party advertisers, ad networks, ad servers and / or through Google. These third-party sites may use cookies alone or in conjunction with web beacons or other tracking technologies to collect information about our users. This may include information about the behavior of users in the Application, the Website and the Services to serve them interest-based (behavioral) advertising. We have no control over these third party tracking technologies or how they may be used. If you have any questions about an advertisement, we recommend that you contact the responsible advertiser directly. Email communications. Do not send emails containing personal health information. We cannot guarantee the security of personal information sent by email because such information is accessible to other Internet users. If you send us a question by email, our use and disclosure of this information will be limited to the minimum necessary to answer your question.

De-identified information:

Occasionally, we may make arrangements with certain customers or business partners to share certain de-identified aggregate statistical information in order to help those customers or business partners improve their services (such as rating patterns, usage, usage and trends). We may also share this type of information with you or other users of our service. This type of information is based in part on information about you, but does not identify any individual (in other words, it is « de-identified »). This information will not be used by the customer or business partner for marketing and / or activities other than those set out above. We remove your identity from your personal information (contact, health and / or financial) and it may be used anonymously (“de-identified). De-identified individual information is information about a user presented in a form where information about an anonymous user is indistinguishable from information about other anonymous users. De-identified personal information is not presented in a form that allows anyone to view it.

studies information that personally identifies a user. Aggregated information is information that describes the habits, usage patterns and / or demographics of users as a group, but which does not reveal the identity of individual users.Your anonymous data is combined with the data. anonymous from other users and become statistics. We may use Aggregate Information to understand the needs of our user community and to determine the types of information and services we can provide to you. We may use this anonymous information to give potential users or business partners a picture of our community and our services. Aggregated statistical information may be provided to third parties. Absolutely no personally identifiable information is included in the aggregate reports; each person remains anonymous. Location information is your name, email address, physical address, and / or other data that allows someone to identify you personally. We may use location information as necessary to enforce the terms of this Privacy Policy.

Law enforcement and protection of Users and the Site.

To the extent permitted by law, we may disclose personal information to government authorities or to a third party as a result of a legal request, subpoena or other legal process. We may also use or disclose your personal information to the extent permitted by law or regulation in order to apply or enforce this Privacy Policy or to protect our rights and interests, and those of our affiliates, of our customers or users of the Application, our Websites, and our Services. Following such disclosure to a third party, your personal information may be accessible to others to the extent permitted or required by applicable law or regulation.

10. Exclusions from the Privacy Policy

This privacy policy does not and will not apply to unsolicited information you provide to us. This includes, but is not limited to, information posted to any public and social media forums, such as MATAKI CONSULTATION social media pages and websites (collectively, “Public Platforms”), including ideas new product designs or modifications to existing products and other unsolicited submissions (collectively, “Unsolicited Information”). All such unsolicited information will be considered non-confidential and we will be free to reproduce, use, disclose and distribute such unsolicited information to other persons without limitation or attribution. Please also note that any personal information you provide will be displayed publicly in the available parts of MATAKI CONSULTATION for those you have added or will add as friends and will therefore not be subject to the terms of this Privacy Policy. We cannot and will not be responsible for i) the people you add as Friends in the app and ii) what those Friends do with personal information or other forms of information, such as, but not limited to personal data, which you choose to make available to the public. Therefore, we advise you to exercise great caution when adding a friend to the application and information that you choose to make public through our Services. Questions about the privacy policy:

Please send any comments, questions or complaints regarding our privacy policy or any request to access or correct your personal information by email using the address below. You can also send written requests to withdraw your consent to the use of your personal information to the following address: contact@mobarni-ts.com.

© MOBARNI TECHNOLOGY SERVICES – November 2021